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Gulf Coast Epilepsy Alliance (GCEA) of Texas is a 501(c)(3) nonprofit organization dedicated to providing essential services and support to individuals affected by epilepsy, seizures, and other brain disorders.
Shena Daly Pearson, along with her son Trysten Pearson, are the founders of GCEA. Their journey began when Trysten was diagnosed with epilepsy at the age of 12. Over the course of five years, they served with the Epilepsy Foundation Texas-Houston, Dallas-Fort Worth, and West Texas. Together, Shena and Trysten worked to advocate for important legislative changes, such as the Texas Compassionate-Use Act and House Bill 684 for Texas Schools. Their efforts also included being featured in an article published by the New York Times, bringing awareness to SUDEP – Sudden Unexpected Death in Epilepsy in collaboration with the Danny Did Foundation. Trysten's achievements, including attaining the rank of Eagle with the Boy Scouts of America, prompted him to establish GCEA.
Join us in our efforts to create a more informed and compassionate community for those impacted by epilepsy, seizures, and other brain disorders.
Mission:
At GCEA, we are committed to promoting awareness, education, and advocacy to improve the quality of life for those living with epilepsy, seizures, and other brain disorders in Texas. We offer a range of resources, programs, and events designed to empower individuals and their families in managing their health and well-being.
Vision:
At GCEA, our vision is to create a world where individuals can live free from the limitations of epilepsy, seizures, and other brain disorders.
Services Overview:
1. Social Security Administration (SSA) Assistance Program
GCEA proudly facilitates exclusive bi-monthly meetings with Social Security Administration. We provide assistance to guide individuals through the complexities of the Supplemental Security Income (SSI) application process.
Since January 2024, GCEA has diligently processed 20 SSI Applications, with 9 successfully approved and the remaining in "pending" status. This milestone highlights our organization's commitment to ensuring the eligibility of individuals for benefits. The approval of these applications underscores GCEA's dedication to assisting those in need. This achievement showcases the effectiveness of our program, leading to positive outcomes for deserving applicants.
2. Medical Referral Program
At GCEA, we ensure that individuals receive specialized care from trusted, experienced medical professionals.
3. Community Support Initiatives
At GCEA, we offer complimentary seizure first aid training upon request. In addition, for 10 years we have hosted a Community Support Program every 2nd Thursday of the month, now held virtually. This event provides essential information and resources by a medical professional related to epilepsy, seizures, brain disorders, and mental health.
4. Canine Partners Program
Our program collaborates with skilled service dog trainers, offering a comprehensive approach to training and nurturing seizure alert or response service dogs. We believe in starting early, providing a puppy headstart program to instill foundational skills crucial for service dog work. Through our unique initiative, we supply dog trainers with seizure samples for specialized training, ensuring these remarkable canines are equipped to recognize and respond to seizures effectively. Our ultimate goal is to gift families affected by epilepsy, seizures, or other brain disorders with devoted companions capable of potentially life-saving interventions at no cost. Join us in fostering connections between humans and their exceptional furry partners.
5. Make-A-Wish Foundation Texas
Founder and CEO, Shena Daly Pearson, is an authorized Wish Grantor for individuals facing epilepsy, seizures, or brain disorders in Texas. Our GCEA team and volunteers work collaboratively to fulfill these wishes and turn them into a reality.
6. Tim Tebow Foundation & RESONATE Texas
GCEA is honored to serve as a founding member and supporter of the "Mainland Night to Shine Prom", an annual event that celebrates the strength and resilience of our nonprofit members.
GCEA is a 501(c)(3) nonprofit organization, all contributions are tax deductible.
EIN# 84-2099498
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